UPDATED 11/18/2011 09:31 PM
Be sure to check back soon! We will be putting up a photo gallery of past lupus events that we attended!
Upcoming Lupus Events
***Saturday, Nov 19, 2011 - San Francisco Lupus Support Group***
Time: 10:30 AM - 12:30 PM
Location: Western Addition Library, 1550 Scott Street & Geary, San Francisco
Saturday, November 19, 2011 - Parents Caring for Children
with Lupus »
Presented by the Lupus Foundation of America
(lupus.org)
Time: 1:00 PM - 2:00 PM EST | 10:00 AM - 11:00 AM PST
Location: Teleconference*PLEASE NOTE: Will be recorded and posted on LFA website after teleconference. Listen to previous teleconferences now »
Presenter: Emily von Scheven, MD
To REGISTER, click here »
Thursday, December 1, 2011 - LFNC Brown Bag Series: All You Need to Know About Benlysta »
Time: 11:30 AM - 1:00 PM
Location: Lupus Foundation of Northern California Office, 2635 N. 1st St., Suite 211, San Jose 95134
Sign up and call 408.954.8600 or email executive@lfnc.org
Online Survey: Managing Lupus with medical & non-medical treatments such as complementary/alternative methods (UPDATED) »
Voluntary, anonymous, and confidential survey conducted by Susan Patick, our speaker from September's support group meeting is researching self-confidence related to managing Lupus symptoms; stress related to having Lupus; and non-medical treatments that benefit individuals living with Lupus for her Master's thesis. Participants must have either a diagnosis of Lupus or a tentative diagnosis of Lupus. Also, in order to satisfy the school's protocol, participants must be between 18 - 64 years of age. Available through
October 31, 2011. Take 15-minute survey now »
Ongoing: Phase I Safety Study of AMG 811 in Subjects With Discoid Lupus Erythematosus »
Contact: Amanda Foster, AMFoster@stanford.edu or (650) 721-7147
Seeking: + Participants diagnosed with DLE with or without Systemic Lupus
Erythematosus (SLE)
+ Be between 18 and 70 years old
+ Meet all study eligibility criteria
The AMG 811 clinical trial will evaluate the safety, tolerability and immunogenicity of AMG 811 in patients with Discoid Lupus Erythematosus. More info: http://clinicaltrials.gov/ct2/results?term=NCT01164917
Ongoing: Participate with the Lupus Registry and
Repository (LFRR)* »
Contact: Domenique Williams 888-655-8787 toll-free or
Dominique-Williams@omrf.org
Seeking: + People with lupus and their families
+ Healthy participants
Asians with lupus and their families are encouraged to participate for a current study that is being conducted.
* The LFRR is sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS, a branch of the National Institutes of Health or NIH), They are the only research resource of multiplex lupus families in the world that scientists in the USA can apply to use in their own lupus research.
Lupus in the News
Abatacept May Benefit Some Lupus Nephritis Patients »
November 14, 2011, Renal & Urology News
Vascular Biomarkers May Help Predict Lupus Nephritis Flares »
November 14, 2011, Renal & Urology News
Lupus Foundation of America Funded Studies Focused on Advancing Research and Improving Quality of Life for People with Lupus »
November 9, 2011,Wall Street Journal MarketWatch
Biopsies May Predict Renal Outcomes in Patients with Lupus Nephritis »
November 9, 2011, Renal & Urology News
Early trials of new lupus therapy show promise »
November 8, 2011, AFP
Vitamin D Shows Early Promise Against Lupus »
November 8, WebMD
Research Study Finds Higher Numbers of People with Lupus »
November 8, 2011, Wall Street Journal MarketWatch
Vitamin D vaccine show promise against lupus »
November 7, 2011, USA Today
Most lupus nephritis patients with end-stage renal disease opt for hemodialysis therapy »
November 7, 2011, HealthNews
Transportation And Childcare Difficulties Top Reasons For Missed Lupus Appointments »
November 7, 2011, Medical News Today
New Study Sheds Light on the Challenges of Developing Lupus Treatments »
November 7, 2011, Wall Street Journal MarketWatch
Lupus Won't Affect Pregnancy, Study Says »
November 7, 2011,ThirdAge
Does Vitamin D Help People with Lupus? »
November 5, 2011, San Francisco Chronicle
Routine statins not recommended for pediatric patients with lupus »
November 3, 2011, Modern Medicine
ImmuPharma in licensing talks for lupus drug »
November 3, 2011,The Wall Street Journal MarketWatch
Lupus Organizations Around the Globe Urge NICE to Provide Coverage for Benlysta »
October 31, 2011, The Wall Street Journal MarketWatch
Although Atorvastatin Fails To Slow Progression Of Atherosclerosis In Pediatric Lupus Patients, It Is Safe And May Help With More Severe Lupus »
October 30, 2011, Medical News Today
FDA APPROVES BENLYSTA FOR LUPUS »
March 9, 2011, FDA Press Release
First new lupus drug approved in over 50 years!
Clinical Connection »
Clinical trial listing for lupus
News from the Lupus Foundation of Northern California
Experimental Drug LUPUZOR Gets Green Light for Phase III Clinical Trial! »
November 7, 2011, LFNC Newsletter
Movement in Lupus and Other Chronic Illnesses »
October 31, 2011, LFNC Newsletter
Tips to Prevent Dental Erosion »
October 24, 2011, LFNC Newsletter
One-stop Resource Sheet: Medical, Insurance, and Health Benefits Resource List »
July 11, 2011, LFNC Newsletter
Interactive Patient Tutorial on Lupus »
LFNC and X-plain.com
Archived Lupus Foundation of Northern California
Weekly Newsletters »
News from the Alliance for Lupus Research
Vitamin D, Interferon Alpha Vaccine Show Promise Against Lupus »
November 5, 2011, HealthDay News
Hospital For Special Surgery Physician-Scientists Share Advances In Rheumatology Research »
November 7, 2011, medcompare
News from the Lupus Foundation of America
New England Journal of Medicine Publishes Results of Study of CellCept® for the Treatment of Lupus Nephritis »
November 16, 2011, lupus.org
Lupus Foundation of America Funded Studies Focused on Advancing Research and Improving Quality of Life for People with Lupus »
November 9, 2011, lupus.org
Dr. Graciela S. Alarcón Receives the Prestigious Evelyn V. Hess Research Award Recognizing a Lifetime Achievement in
Lupus Research »
November 8, 2011, lupus.org